Friday, August 20, 2010

And the Curve Balls Keep Coming!

Well, what a story I have to tell! Jamie and I have been very unsettled about the whole surgical issue. Well, who wouldn't be...Right? We had very different perspectives on how Dax's ASD should be fixed. We researched till our eyes were so strained from the computer that it hurt to keep them opened. "Overwhelmed", really is not the word for it! Hopkins, based on the echo already wanted to schedule a surgical date for mid September and I felt too pressured and uneasy. I had just come to terms that Dax needed surgery but how was really eating at me. How do you place an implant in your own child that failed you? But, on the other hand how do you choose for your child to be cut open when is he perfectly fine at this moment?? Ugh...honestly I broke down last night and told Jamie this is something in life I just can't handle. For me the choice was easy when it was my body. When it comes to my baby boy...it's a different story. I was harvesting guilt and apprehension to say the least. So today was a day of built up emotions. We were scheduled to meet with a Doctor from Children's in D.C. This Doctor came highly recommended and initially had stated that Dax was recommended for surgery based on the echo performed at a local hospital. We had decided to pay him a visit after being overwhelmed by Hopkins. Jamie and I decided Dax needed to have a local pediatric cardiologist to follow him throughout his childhood and we just wanted to directly hear what he had to say. We enter his office and his staff was great. All were interested in Dax's outcome. The Doctor evaluated Dax and wanted to repeat his echo. He stated that the initial echo wasn't of the best quality and wanted to evaluate Dax from his own machine. So again Dax is hooked up and evaluated. There were six of us in the echo room just starring at the monitor...waiting. The Doctor stated his ASD appears much smaller on his machine. He did say that there is a plus or minus factor but that his ASD appears half the size. This time stating no surgical intervention was needed at this time. I tell you it was music to our ears! His advice was to wait another year and reevaluate Dax to see what changes occur. Will it grow? It's possible. Will it shrink? It's possible. Or possibly will it remain the same. All is unknown at this time. But, what was accomplished was that...We have time! We have time to decide and to think and to watch. God for some reason knew we weren't comfortable and just maybe might perform a miracle for our family yet again:) God made us aware of our little boy's issues but also gave us time to process and decide what is best for him. God might even present us with newer options. But, he has given us more time and hope to decide what's best for our baby!! That in itself is just what we need right now! So, from here we are waiting to hear back from Hopkins and probably I will go ahead and speak with CHOP. Until then, we are relieved and so very thankful to all those that prayed for our family! We value each and every one of you. Please know that because of your prayers I firmly believe Dax can have his own miracle!

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