As you know I've turned to writing for my new found comfort and for informative purposes for friends and family. Today, my world was rocked like no other. Seems my heart story is no longer just mine. I now share it with my littlest angel Dax. When I was just diagnosed I of course ran straight to listen to my children's little hearts. Mya's was strong and perfect and then there was Dax's. His was booming and here and there had what sounded like a never ending beat-swish. I was in denial thinking I was making this all up in my head. I had been encouraged numerous times to check the kids out by my cardiologist but I felt sadly if I'm not aware it will go away. Really not the best way to handle the situation but I felt too weak to handle it any other way. I had been through so much and my life was finally stable and happy again. So, this year I happily strolled into the pediatrician's office. Mya was first and finished quickly. Dax went next(as the stethoscope was placed on his chest) the pediatrician said...now can you tell me your heart history again. Ding Ding! My hidden fears were confirmed. So, echo's were ordered and performed. Dax's took a little longer but again...I was just putting silly thoughts in my head. Until, Dax says, "Mommy, mine took longer than Mya's". Ughh just another coincidence. One day later(today) I receive the call. "Well, Anne I've been sitting here trying to think of what I might say to you. I don't know how to tell you this and it saddens me to do this but I have to. I know clearly you wanna run but you can't any longer....Dax has a streched PFO and an ASD. He is 6 and at that age all openings should be closed independently. Especially with your heart condition and history. It appears it would be best if you meet with a pediatric cardiologist/surgeon. I can't be 100% sure they will fix it but I'm almost positive they will suggest some form of surgery or procedure. Most likely a closure device performed via catherization."
So, basically I will need to find a great, trustworthy pediatric cardiologist to take a look at Dax. I am filled with so many emotions at this point. Yes, I do know that it could be much, much worse and that knowing is better. But, wow we've been through so much these past couple of years!! So many complications occurred and permanent damage it's just down right scary!! So, I'm gonna focus on ONLY the positive. My friend said it best,"God's plan was for me to be sick first so that I can help chose my son's path and show him strength." We will get thru just like before. I am thankful that God gave me the strength to help diagnose Dax early before he has complications like I did. I am thankful that he will be healed and live a strong healthy life! I am thankful that he has fairly common heart defects that are the easiest to fix. I am thankful for today's technology and medical advancements. Lastly, I am thankful for knowing that I have faith in God that He will take care of my baby no matter what life brings! I will not run or push Him away I will find my strength from Him! So, my dearest friends...here's what you can do: Please pray and if you know or have any advice big or small please give it. Don't worry about over stepping or thinking it might upset me. If you know of anyone who has had surgeries or knows of a pediatric surgeon(a friend of a friend ect) please send their number my way. I would appreciate any input or advice big or small! I'll keep you all posted. Thank you to all of my incredible friends who I honestly couldn't do without!! Love you:)
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What a heart-wrenching thing to have to be told to a mother. Do not worry though! You have caught it early and God will watch over your family. I will certainly keep you in my prayers*
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